Claire update

Thank you all so much for your well wishes and congratulations on Claire. She is a wonderful baby, very happy and truly a joy to be around.

Claire ended up spending 12 days in the NICU and has already undergone one surgery on the outside of her heart. She did wonderfully and was home just 3 days after this surgery. Her next heart surgery will probably be in 1-2 months.

I have loved being at home with Claire and am not looking forward having to go back to work in a few weeks. Thankfully, I am only returning to work 3 days a week, so I will still be able to spend lots of time with my girl.

Thank you all for sticking with me and my blog though all of my down time. I finally have a little time for reading and hope reviews will be posted regularly soon.

It's a Girl!

Claire Audrey arrived by C-Section at 10:24 am on Weds Jan 13. She weighed 5 lbs 4 oz and was 17 3/4 inches long. She was about 3 weeks early and is still in the NICU. She is doing very, very well. She is currently in an ioslette as she has jaundice. In addition to the heart defect that we knew about, there is a second condition that the Drs are watching. There is a vessel in the heart that usually closes within a couple of days of birth. Claire's vessel is still open, so they started her on meds last night to hopefully close this without surgery. They will do another echo on her heart on Friday and hopefully the meds will have worked their magic. If not, there is a possibility that she may have to have surgery to close this.

As you know, there was a suspicion before birth that Claire might have Down syndrome. This was confirmed by a genetic screening. What this extra chromosome means to us is that there is more of her to love! She is already an absolute joy and we can't wait to get her home.

I will be moving any parenting/Down syndrome content to my personal blog. There may be some books that deal with Ds reviewed here, but my focus on this blog won't change much. I haven't had any time to read lately but hopefully will be back in the groove soon.