Claire Audrey arrived by C-Section at 10:24 am on Weds Jan 13. She weighed 5 lbs 4 oz and was 17 3/4 inches long. She was about 3 weeks early and is still in the NICU. She is doing very, very well. She is currently in an ioslette as she has jaundice. In addition to the heart defect that we knew about, there is a second condition that the Drs are watching. There is a vessel in the heart that usually closes within a couple of days of birth. Claire's vessel is still open, so they started her on meds last night to hopefully close this without surgery. They will do another echo on her heart on Friday and hopefully the meds will have worked their magic. If not, there is a possibility that she may have to have surgery to close this.
As you know, there was a suspicion before birth that Claire might have Down syndrome. This was confirmed by a genetic screening. What this extra chromosome means to us is that there is more of her to love! She is already an absolute joy and we can't wait to get her home.
I will be moving any parenting/Down syndrome content to my personal blog. There may be some books that deal with Ds reviewed here, but my focus on this blog won't change much. I haven't had any time to read lately but hopefully will be back in the groove soon.
36 comments:
Congratulations, Melissa! What a doll! Sending thoughts and prayers your way for quick healing and being able to bring her home soon!! Hugs!
What a precious one! Sending thoughts and prayers your way that all will be well and you can your little doll home soon. She's just beautiful!
Melissa....Little Claire is just beautiful. Sending lots of love and prayers your way. Congratulations
Congratulations to you and yours! How exciting! What a little peanut. My prayers are with you and her so everything goes smoothly!
Congratulations! She is so precious! Hope everything goes well and she can go home soon!!
Congratulations! She is so beautiful! I will be praying for you all so she can go home with you soon.
She is just beautiful! Congratulations!
Congratulations!! She's so gorgeous! And Claire Audrey is a beautiful name. Sending you prayers and good wishes that the medicine will do the trick. So glad to hear she is doing well in the NICU. Hope you are feeling well and you will both be relaxing at home soon! I can't wait to see more photos of your sweet baby girl!
Oh Melissa, she is beautiful. I've been thinking about you, as I hadn't heard from you lately. I will pray that her valve closes and she can go home soon. God bless that little angel.
Melissa, she's beautiful! Congratulations - I'm keeping your family in my thoughts; hopefully Claire won't need surgery and can come home soon :)
Congratulations Melissa! I hope that everything goes well and you hugging her in the comfort of your own home soon.
Oh my goodness....she is a perfectly beautiful little angel! Congratulations to you and your husband!
I hope she gets that fixed up and home to you soon!
I can't wait to watch the sweet girl grow up! Please make sure and update us!
What a sweet little baby! She's so adorable. And I love her name. Best wishes, that you get to take her home soon.
Congratulations, and lots of happy thoughts sent in your direction for good health and happiness!
Congratulations on your beautiful baby girl. I will be praying that no surgery will be necessary.
Congratulations, Melissa. I'm so happy for you. Look at how tiny she is. How precious. Sending love and hugs your way. :D
Congratulations Melissa! Claire is absolutely beautiful (I'm sure more beautiful than you ever thought possible). I am sending lots of positive thoughts and energy your way that little Claire will be in the coziness of her own home soon! I look forward to traveling beside you as you navigate your way through the wonderful world of Down syndrome and all that it has to offer!
Yay! She's here!! Congratulations Melissa! I will be praying that she heals quickly and that you can bring her home soon. She is really a beautiful little girl.
Congrats, Melissa! I hope she's well enough to come home soon!
Congratulations on your beautiful baby girl!!
Congratulations on your precious bundle of joy!
She's lovely. Congratulations! Hope everything is going well.
She's so tiny! My boys both spent some time in the NICU for jaundice and at the time I wanted nothing more than for them to be home, so I can imagine your impatience. Congratulations.
Congratulations on the birth of your daughter! I'm sure with your attitude, she will reach her full potential -- and isn't that all you can ask of any child?
Love the name! Welcome to the world, Claire.
Congratulations! What a beautiful little girl. :)
--Anna
Diary of an Eccentric
Oh, sigh! Look how gorgeous she is! Congratulations, and prayers for her medical issues. Love and what a beautiful name!
Oh, sigh! Look how gorgeous she is! Congratulations, and prayers for her medical issues. Love and what a beautiful name!
Congratulations! She is so gorgeous! :D
Congrats Melissa! She is such a cutie. I worked my way through my social work degrees working in group homes for adults with developmental disabilities. All the people with down syndrome have been the best bunch of people to work with. She is your child, she is precious and that's all that's important.
My fingers are crossed that she won't need surgery. My thoughts are with you!
Congrats Melissa! Claire is absolutely beautiful! I'm sending lots of prayers that things will go well and you'll have her home in no time.
She's a beauty. I hope the meds worked and she's home now, making it tough for you to sleep. ;-) Enjoy the sweet snufflings and nuzzlings of the newborn world.
Congratulations....she is precious.
Sending thoughts and prayers to you and your new family.
CMash
She's absolutely beautiful. Congratulations!
Claire Audrey, Welcome to the world, baby girl! You lucked out in the Mommy Dept.
Congratulations on Claire's arrival. She is absolutely gorgeous!
I've taken a blog-break and just saw this. I'm off to subscribe to your personal blog!
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